When our Daughter Kayla was 10 weeks old she was diagnosed with Cystic Fibrosis. The average life expectancy at that time was 18 years old. This year marks Kayla's 42nd birthday, which says multitudes about the advancement of the treatment of CF. This life saving research is expensive, and has taken years of research to get us here. But our work is not done. Cystic Fibrosis is still a genetic killer and we are holding out for a cure.
Mark and I have been active with the CF foundation for over 40 years now. We have participated in many of the fundraisers for Cystic Fibrosis and many of you have been generous with your donations. We are asking you again to help with this life saving research.
I would like to thank you again for all the previous years you have donated and helped to make our Great Strides walk a success. We are hoping for good weather and a good turn out!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.