Our Great Strides Story
On January 11 of 2023, our world changed forever after the birth of our first born baby, a son, named Hayes. Within hours after birth, Hayes was exhibiting signs of a distended bowel, which prompted him to get set into the NICU. At five days old, Hayes had surgery on his bowels. Although they weren't exactly sure what his diagnosis was until surgery, his team of Doctors and nurses believed that Hayes was showing signs of a Meconium Ileus, a condition that is commonly found in children who are born with Cystic Fibrosis.
After surgery, his surgery team did share that MI was indeed what was causing Hayes' distended bowels, and about a week later, we got the official newborn screen results back confirming what we had already knew: Our baby boy was positive for Cystic Fibrosis, and had the gene mutation Double Del f508.
Cystic Fibrosis was a world we never asked to be a part of, but one that God gave to us because he knew that we would be advocators for our son and for this community.
Currently, there is no cure for Cystic Fibrosis.
By helping our fundraising goal, you are helping CF Patients just like Hayes to experience a future.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.