Tara Ebben

My Great Strides Story

Many of you know that our grandson Dutton was diagnosed with CF at just 10 days old through his newborn screening. I remember the tearful phone call from my daughter the day they received the diagnosis. In the moment, it was hard to see God’s plan, but it is much clearer now. We get to help so many CF families by bringing awareness, donating, golfing/sponsoring in CF golf outings, walking in CF walks, and sharing our story with other parents and grandparents going through similar situations. We are grateful for all of the CF support systems that are in place to help all of these families.

Dutton is now 2 years old; he takes enzymes every time he eats, Orkambi twice daily, and a multivitamin once a day; this helps his body digest and absorb nutrients. He also receives chest physiotherapy (the vibrating vest) for 20 minutes accompanied with a nebulizer treatment at least  twice a day to help break up any mucous in his airway. As he gets older there will be more medications/treatments to expect for Dutton. He visits his CF team in Green Bay every few months to make sure everything is going okay and to discuss any changes with treatments. Other than him having CF, Dutton is a happy and healthy little boy.

We are also raising money for the CF Foundation this month with the Great Strides walk to raise awareness, our goal is to raise $1,000. We greatly appreciate any and all support!

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.