My Great Strides Story
Our sweet little Dutton was diagnosed with CF at just 10 days old through his newborn screening. I remember feeling overwhelmed with emotion and lots of questions were running through my head when his pediatrician shared the news with us. That same day we met with his CF team to learn more about his diagnosis and what to expect. In the moment, it was hard to see God’s plan, but it’s much clearer now. We get to help so many CF families by bringing awareness, donating, golfing/sponsoring in CF golf outings, walking in CF walks, and sharing our story with other parents going through similar situations. We are grateful for all of the CF support systems that are in place to help all of these families.
Dutton is now 2 years old; he takes enzymes every time he eats and a multivitamin once a day; this helps his body digest and absorb the nutrients. He recently started a modulator called Orkambi and has adjusted well to the new medication. He also receives chest physiotherapy (the vibrating vest) for 20 minutes accompanied with an albuterol neb treatment twice a day to help break up any mucous in his airway. We visit his CF team in Green Bay every few months to make sure everything is going okay and to discuss any changes with treatments. Other than him having CF, Dutty is a happy and healthy little boy.
Thank you for reading our story. We appreciate all of your support!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.