Sarah Horne

Hello and welcome!
I’m Lena’s mom. Since her diagnosis at just 10 days old, it has become our passion to bring awareness to this rare, genetic, life-shortening disease that not only makes it difficult to breathe but also affects the digestive track. Real progress has been made in recent years for those living with CF, but there is still no cure for this devastating disease and many lives are cut far too short.

Lena’s diagnosis came from her newborn screening and was confirmed with a sweat test a few weeks later. It has been a whirlwind of emotions since that day, but we have not stopped believing in more tomorrows for our little warrior. We are so grateful for an amazing support system and the CF Foundation that goes above and beyond, not only in support for the families, but in their efforts to find a cure.

Until that glorius day, Lena must take enzymes before every meal to help her body digest and aborsb nutrients. She has also receives chest physiotherapy for 20 minutes twice a day (some times more when sick) accompanied by an Albuterol inhaler. When she turns 2, we will get to start a new medication – Orkambi which will help improve her cell function. We visit with the CF team at Children’s Hospital of Wisconsin every 3 months for check-ups and I’m happy to report that she is a happy, otherwise healthy toddler with an unusual appreciation for tomatoes.

Feel free to visit https://www.cff.org/ to learn more about cystic fibrosis.

We can’t thank you enough for all your support!

Love,
Sarah, Kelly, and Lena

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!