I was diagnosed with cystic fibrosis in 1977, when I was three months old. At that time, my parents were told to take me home, love me as much as they could, and enjoy every minute, because I wasn’t going to live very long. Since my diagnosis, 46 years ago, I have continued to beat every odd that was stacked against me, I got married, I graduated college with a bachelors degree in nursing, and most importantly, I became a mom. I have lived my life never letting CF deter me from my dreams or slow me down. Unfortunately, in 2011 my health was declining faster than I could keep up. I was a mom to a busy four year old boy, and a nurse working full-time, something had to give. I quit my job and spent the next nine years in an out of the hospital every three months, like clockwork. In 2019 I received the miracle I’ve been waiting for. Trikafta was approved by the FDA and I was able to begin it immediately. In the 4 1/2 years since I began Trikafta, my health has done a complete 180. I have only been hospitalized three times, I was able to watch my son hit milestones, like turning 16 and getting his license, and most importantly, I was able to go back to work. I scored my dream job about a year ago, and I am a nurse at Children’s Hospital. Unfortunately, there are still patients that are unable to receive Trikafta due to their genetic make up. This is why Great Strides is so important, and other fundraising is crucial to finding a cure for CF. All of the patients that are unable to receive Trikafta deserve their second chance as well. Continued research will help bring their miracle drug. But we won’t stop there. We will keep doing this until CF stands for CURE FOUND!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal $7500.00. Better yet, I would love if you would join my team. As a group, we can raise even more! Please let me know if you would like to join my team, “Dirty Lungs”, and walk to find a cure for CF. The walk is, Sunday, May 19th.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.