My Great Strides Story
This May, I am once again fundraising for the Cystic Fibrosis Foundation because my 11 year old son, Matthew, has cystic fibrosis. Matthew joins an estimated 40,000 other Americans who live each day with cystic fibrosis, a disease for which there is no cure.
Since 1955, the Cystic Fibrosis Foundation (CFF) has been raising awareness and money to fund the development of treatments, therapies and ultimately a cure for cystic fibrosis. The CFF has funded many excellent treatments; however, approximately 25-30% of people with cystic fibrosis are unable to tolerate the most effective medications called modulators. Unfortunately, Matthew is in this group.
Because the CFF continues to push for the ultimate cure for everyone with cystic fibrosis (and we believe it WILL happen), Scott and I are actively involved with the CFF. We both help to fundraise and I help mentor other CF parents and serve on the CFLN (Cystic Fibrosis Learning Network) which seeks to improve clinical processes and outcomes.
If you are interested in helping, would you consider making a donation? Any amount is greatly appreciated and contributions are always tax-free. My ambitious goal this year is to raise $5,000. It’s motivating to imagine how today's donations will be used by the Cystic Fibrosis Foundation to fund the next decade’s worth of developments — and someday even the ultimate cure for cystic fibrosis.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.