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Hello friends
From my Daughter Samantha:
Cystic Fibrosis Awareness month starts today and you all can be involved!
This is near and dear to my heart for many reasons.
1. I suffer with cystic fibrosis on a daily basis. And while most people would never know, it is hard and time consuming and honestly, frightening not knowing what each day will bring. Very few people have been privy to my struggle and they are the best supporters I can ask for! Love you all!
2. I have 2 other siblings (Gabby and Nathan) who currently suffer with cystic fibrosis as well. Again for the most part, they are silent fighters each day, doing everything they can to keep themselves heathy for the day our cure comes, while fighting to exist in "normal" everyday life.
3. I lost one of my brothers and best friends, Nicholas, to this terrible disease last July. May 2015 was a scary and hopeful month for us all last year when Nick's health diminished, but he was final listed for a liver and double lung transplant. He fought stronger than anyone I have ever seen. He sat immobilized for months in a hospital bed hooked up to more machines than I knew existed. Yet he joked, smiled and remained himself each day. He is my inspiration and we all miss him each day.
Nick was "normal" to the majority of people that knew him too. But his struggle, our struggle and all others who suffer with this terrible diseases struggle may be silent, but they are tremendously difficult. Hundreds of people supported my brother nick when he was sick and we need to continue that support in honor of him and the rest of us struggling.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.