Ava is a Freshman at Nicolet High School..Ava was originally diagnosed when she was 1 years old and was sick with 2 kinds of infection. Despite the newborn screening program Ava was not diagnosed at birth. But rather just before her first birthday after a sweat chloride test at Children's . That is when we met with the Cf team at Children's. Who told us that they are now our second family. While dealing with the heart break of this devastating news this is when we began to realize the incredible care at Children's and the treatments and medicines developed by the Cf foundation would be Ava's lifeline. Everyday from then on we've had a deep appreciation for the Cystic Fibrosis foundation and all of it's discoveries and development. We are thankful for all the things that have helped Keep Ava healthy over the years. This includes daily vest and nebulizer treatments and specialized antibiotics. At the time of her diagnosis Ava was already very sick with lung infection's and spent 16 days receiving IV antibiotics treatments and incredible care by doctors, nurses and respiratory therapists to make her well enough to go home. Over the years the daily vest and nebulizer treatments, along with pancreatic enzymes and antibiotics as needed have kept Ava mostly healthy. Unfortunately in November 2017, Ava came down with a lung infection that need required another 2 week stay at Children's for IV antibiotics .
Then again February 2018 Ava came down with yet another lung infection that would require another 2 week stay at Children's for IV antibiotics. Also, at that time she diagnosed with Cf related diabetes which we were always told is inevitable for kids with Cf. This has presented Ava with a new challenge of managing diabetes along with her Cf health.
Through all this Ava has been doing well with both CF treatments and insulin treatments.
Eventhough, Ava has been hospitalized 4 times she's had many long periods of good health and doing all the things that kids like to do while growing up. She is extremely active and doesn't let her Cf or diabetes slow her down.
She enjoys snowboarding, gymnastics riding her bike, volleyball, basketball spending time with friends and playing sports with her older brother Jonah.
Ava does her treatments twice A-day which includes to nebulized medicines. She also does insulin injections and takes 6 or 7 Enzyme pills with meals. She does all this with barely a complaint.
Nothing seems to slow her down.
Again, we so thankful for all the tools invented by the Cf Foundation. None of this would be possible without the fund-raising events the participants and donors. We are always blown away by the kind hearted people that volunteer their time to raise funds to help Ava and others with cf to live a normal life. These donations are used to pay for development of Treatments and medicines by scientists. That will hopefully someday Ultimately lead to a cure.
Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.