Bryce Porter Bungard was born April 8, 2019. At two weeks old, he was diagnosed with Cystic Fibrosis. This news came as quite a shock to his family, but they did what they do best-they rallied! They created a team, Bryce’s Buddies, and joined with the CF Foundation to help raise awareness and support the foundation’s mission to cure CF. In less than two years, along with their friends and family, Bryce’s Buddies has raised $36,000!
The money they raised supports pharmaceutical trials and research, and real progress is being made! In October the FDA approved a new triple combo called Trikafta, a new, highly effective CFTR modulator therapy that treats the underlying cause of CF. TRIKAFTA was approved for people 12 and older who have at least one F508del mutation, which Bryce has! The approval of TRIKAFTA means that more than 90 percent of people with CF could eventually have a highly effective treatment for the underlying cause of their disease.
They are now testing TRIKAFTA on children ages 6-11. This is such exciting news for the CF community! Today Bryce is thriving. He loves Buzz Lightyear, climbing, playing with his big brother Rowan, eating and running all over the place. His diagnosis was life changing, but with the support of his family, it isn’t changing his life! He continues to amaze his doctors with his growth and his overall good health.
2020 saw amazing progress in the treatment of CF, and there are such high hopes for what more can be done in the future. We thank you for your donation and for supporting sweet Bryce and his CF journey.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.