Clayton Douglas Himmler was born on October 24th, 2017. A week after his birth, Jen and I were informed that he tested presumptive positive for Cystic Fibrosis. The next day, Clayton was taken to Children's Hospital to take a sweat test and it was confirmed that he has Cystic Fibrosis. Jen and I did not know how to respond, and we did not know what this was going to mean for us and especially Clayton.
Clayton is now a one year old and learning new things like any other child, such as walking and talking. However, his daily routine has additional "must do's" to keep him healthy. In addition to his chest therapy done twice a day, he now takes Pulmozyme through his nebulizer once a day to help break up the DNA that causes the thick mucus buildup in his lungs. In a few months, he will be getting a shaker vest to help with his chest therapy.
Clayton's digestive system is also affected due to his CF. He must take Creon, a pancreatic enzyme, before eating any fats and/or proteins. He is currently taking at least 16 pills a day to assist with his meals. This also means he cannot snack whenever he wants to. If his snack has any fat or protein, then he must have extra enzymes.
We do not know what Clayton's future will look like, but we have hope. Consider joining Clayton's Army for the Pittsburgh Great Strides event and help add tomorrows to all those living with CF!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.