Hi! My name is Leo Collins! I was born on August 16th 2019. Mommy and Daddy were so happy to meet me! I am the first grandchild for both sides so when they finally let everyone in, my grandmas raced down the hall! I was named after my great grandfather who lived to 100 years old! About a week after I was born Mommy and Daddy got a phone call. I tested positive for the Cystic Fibrosis gene. I needed an extra test to confirm whether I had the disease or not. That day at Children’s Hospital of Pittsburgh was really scary. Strange people came in and made me super warm. They needed me to sweat so they could test it. When we were done, Mom, Dad and I met with the doctors. They told Mom and Dad that I had Cystic Fibrosis. Turns out Mommy and Daddy are carriers and did not know it. They each gave me a gene and that is how I got it. Mommy and Daddy started crying but I didn’t know why they were so sad. I feel fine! Since that day they started doing new things with me. I take some medicine with applesauce before each bottle, so I can absorb the nutrients from my food. I also need extra salt added to my bottles to replace the salt I loose when I sweat. Each day they tap my chest with little blue cups to help me cough up some gross mucus. Unfortunately I have already had a few hospital stays because when I get sick I take longer to get better. I hope that you will come walk with my friends and family to help raise awareness for kids like me! So much research has already been done and kids like me are living longer because of it, but I am hoping so much more will happen! Please come support me and if you can’t make it every little donation helps!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.