Congratulations to Sadie’s Soldiers --- Top Fundraising Team
Four Years in a Row – raising $41,000 for Cystic Fibrosis
Hello to all my “Soldiers”,
I can’t believe we did it again, our fourth year, now we have to break the record again and make it five years in a row. Many thanks to my amazing group of friends, family, our Brewing Up A Cure event, CF Cycle for Life and Dan and Steve’s (Studio Raw Elite) fundraising campaign for all the love and support you have given me throughout this year. I’m truly blessed to have every one of you in my life! Way to go Sadie’s Soldiers!
Last year’s walk started out to be a rainy day but ended with plenty of sunshine just in time for the walk. This year the walk has a NEW DATE – June 1st and NEW VENUE - Heinz Field Stadium, 100 Art Rooney Avenue, Pgh, PA 15212.
Please join in my 15th Sadie’s Soldiers Walk. Registration starts at 10:00am and the walk begins at 11:00am with lunch upon completion of the walk. Please remember to park in either the garage, in one of the lots or there is street parking around the stadium on the North Shore. Look for Sadie’s Soldiers Team Flag in the stadium to gather together and pick up my team shirt. As last year, the walk is a combination of North Park, South Park, North Shore and Boyce Park making a bigger presence and awareness in the city.
REMEMBER – everyone must register online and donations are recommended online or mail checks to my Mimi (see address at the end of this letter – also note new address as Mimi and Papa Rich have moved). But if you can’t do either of these just bring your checkbook or credit card to make your donation on walk day. If you donate $100, you will receive a CF corporate T-shirt (if you register and walk with me you will also receive one of my t-shirts too). PLEASE register online at http://fightcf.cff.org/goto/sadiessoldiers19 prior to walk day and make your donation.
All About Sadie:
This past year has been an eventful year-to say the least. Now where do I begin? Over the summer, I went to Geneva-on-the-Lake twice for a camping trip. That is probably one of my favorite places to be. One time while there, I caught the biggest catfish in the pond. I had to name him, of course. So yeah I caught Henry the catfish at Geneva. We also went camping up by Seven Springs. That was more like camping and in the woods, so it was more adventurous.
Over the past year, I worked really hard in the arts. I took CLO summer camps, one for acting and the production of Wizard of Oz. Both were a lot of fun and quick as they were only for one week, tear. Again, this year I am taking dance at Richelle Lyn School of Dance, as well as competing!! We had our first of three competitions in March. I competed a solo and won high gold and received a judge’s award for “Fantastic Facials”. I also did a duet with my friend, Nora, to the Phantom of the Opera. We got 8th overall, gold, and a judge’s award as well. At my studio, I also take voice lessons and acting/musical theatre classes. All of these classes helped me be able to work on the school musical. Yes! I was in Fox Chapel’s production of Les Miserables. It was one of the best experiences I’ve ever had. I also love seeing musicals in town. Over the past year I saw, Anastasia, Hamilton, Aladdin, and Phantom of the Opera.
This year I started 9th grade, high school. It is definitely better than middle school and I really enjoy it. I had my first ever HS dance, Homecoming. It was a lot of fun and I was happy I could go with my best friends. In November, I went to Ohio with my Mimi and Grammy, and of course my buddy/brother, Oliver. We visited Castle Noel and the Christmas Story House.
If you don’t know, my family and I are huge hockey fans. We love seeing the Youngstown Phantoms and Wheeling Nailers. But of course, we also love watching your Pittsburgh Penguins on the TV. Over spring break, with Mimi and Papa Rich, we went to Toronto to see a Maple Leafs game and the Hockey Hall of Fame. Yeah, we are definitely NOT hockey fans at all, ha-ha!
My Health and Research Update :
My health has been good since I was approved to take one of the new therapies – “Symdeko” that was approved for CF kids who have two copies of the most common CF mutation, F508del, which is my mutation. My PFT’s have been more consistent since I have been on this new therapy treatment. In December, I was put in the hospital with IV antibiotics. I was in the hospital for about 5 days but then I got to come home. At home, Mom and Dad were my nurses whom took care of me and all the IVs. But I’m doing very well now and just living life to the fullest.
The newest news is the approval of a triple-combination CFTR modulator therapy that could over time lead to more than 90 percent of people with CF having highly effective treatments for the underlying cause of this disease. The triple-combination modulators also have the potential to be significantly more effective than current modulators for many people with two F508del mutations (which is me).
This is why we fundraise for Cystic Fibrosis as they are making “Great Strides” in finding the end to CF. Every dollar helps them find the cure.
Remember that money buys science and science buys life!
Please remember to register and make your donation online prior to walk day – June 1st. I will also have team shirts for everyone.
If you can’t walk, please be an “Angel Walker” by making your donation online or mail to my Mimi made payable to the Cystic Fibrosis Foundation at the address below. There will be food, beverages and activities for everyone after the walk. Please include your email address too.
See you at the walk – Saturday, June 1st – Heinz Field Stadium
100 Art Rooney Ave., Pgh, PA 15212
10:00am registration and 11:00am the walk starts
Carol Terrick Israel
505 Wedgewood Court
Harmony, PA 16037-9782
Lots of Love and Kisses Always,
Please attend and support two other events that raise money for Sadie’s Soldiers
CF Cycle for Life – Sunday, September 8, 2019 – North Park
Brewing Up A Cure – October 19, 2019
NEW VENUE - Energy Information Center - Pittsburgh
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.