Hey everyone! Lego My Lungs is back again and we sincerely hope that you can come join us on walk day May 17th at Point State Park or support us by being a "virtual walker"!
Our participation in Great Strides is a personal one - RJ is of course a CF patient.He's one of about 30,000 Americans that live with CF.It's important to note that 90% of every dollar raised goes to research - more than any other organization! And - it's working!On July 5, 2015,a combination drug therapy known as Orkambi was approved that directly treats RJ's mutation - Delta F508. RJ began taking Symdeko, another combination therapy, in later 2018 and has noticed a marked improvement in his health. Last year, the FDA approved an even better drug, Trikafta, which RJ will begin taking in February (on his 35th birthday!). It's not a cure, but we are hopeful that it will continue to improve his health!
We have many things to celebrate this year - RJ's 35 birthday, continued good health, new jobs, RJ & Erin's seventh wedding anniversary, and Amelia's fifth birthday! When you walk with us and/or support us, you are giving RJ many more tomorrows and the hope for an even bigger, brighter future!
Last year we raised over $500 - can we do it again? **we made it on 3/3/20! THANK YOU!!**
Lego My Lungs team is proudly sponsored by +Public, a benefit corporation in the State of Pennsylvania owned and operated by RJ Thompson and Kent Kerr
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.