Bryce Porter Bungard was born April 8, 2019. At two weeks old, he was diagnosed with Cystic Fibrosis. This news came as quite a shock to his family, but they did what they do best-they rallied! They created a team, Bryce’s Buddies, and joined with the CF Foundation to help raise awareness and support the foundation’s mission to cure CF. In 2019, along with their friends and family, Bryce’s Buddies raised $18,700!
The money they raised supports pharmaceutical trials and research, and real progress is being made! In October the FDA approved a new triple combo called Trikafta, a new, highly effective CFTR modulator therapy that treats the underlying cause of CF. TRIKAFTA was approved for people 12 and older who have at least one F508del mutation, which Bryce has! The approval of TRIKAFTA means that more than 90 percent of people with CF could eventually have a highly effective treatment for the underlying cause of their disease. Soon they will be testing TRIKAFTA on children ages 6-11. This is such exciting news for the CF community!
Today Bryce is thriving. He loves smiling, playing with his big brother Rowan, eating and crawling all over the place. His diagnosis was life changing, but with the support of his family, it isn’t changing his life! He continues to amaze his doctors with his growth and his overall good health.
2019 saw amazing progress in the treatment of CF, and there are such high hopes for what more can be done in 2020. Please join in supporting sweet Bryce and his CF journey by donating to the Cystic Fibrosis Foundation Team "Bryce’s Buddies!"
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.