Team Superhero Princess

Our Great Strides Story

This team proudly fights for Lucia and Palmer Santichen, 3 year old identical twin girls with one of the rarest forms of CF. Upon birth, they were life-flighted to Pittsburgh Children's Hospital, a two hour drive from home, where they spent their first 104 days in the NICU. They endured several surgeries and had a few close calls. The girls are currently doing well and thriving but their genetic mutation doesn't respond to the medications currently available. Lucia and Palmer are among the 7 percent of Americans living with rare variants of CF. Additionally, there are only 10 other Americans alive with the variant they have, making the total 12. 

Our team consists of Lucia & Palmer's parents, grandparents, aunt, great aunt, and cousins, yet our fundraiser is carried out by an army of family and friends that love and adore Lucia & Palmer. Last year our goal was $3,000 and surprisingly we raised a little over $11,000! This year our goal is $10,000 but we are striving for $20,000!! Money for research is needed for everyone with CF and desperately needed for the 7 percent of Americans with rare mutations. Your donation is most appreciated.

We walk for a cure for all people with cystic fibrosis. By joining our team, you can help us end this disease!

To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.

Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by their disease. We can’t wait for you to join us! Until it's done!!