Clayton was born on October 24th, 2017. A week after his birth, we were informed that he tested presumptive positive for cystic fibrosis. The next day, we took Clayton to Children's Hospital of Pittsburgh for a sweat test that confirmed the diagnosis. We did not know how to respond, and we did not know what this was going to mean for Clayton's future.
Clayton is now five years old and thriving! He loves to ride his bike, jump on trampolines, sing, make up imaginary games, and go camping. For Clayton to remain healthy, so he can do the things he loves, his daily routine includes "must do's". In addition to his shaker vest done twice a day, he also takes Pulmozyme through his nebulizer once a day to help break up the DNA that causes the thick mucus buildup in his lungs. He spends at least 1 hour and 15 minutes daily on these therapies. Clayton's digestive system is also affected due to his CF. He must take Creon, a pancreatic enzyme, before eating any fats and/or proteins. He is currently taking at least 24 pills a day to assist with his meals.
All in all, Clayton's daily routine is very manageable. He has CF, but it does not define him! We are very fortunate that Clayton lives in a time with breakthrough research and treatments being developed. One such treatment is a medication called Trikafta. This medication is already on the market for those ages 6 and older. It is truly a life-changing drug for those with CF who are eligible to take it; however, not everyone with CF is able to benefit from it. Your donation to Clayton's Army helps the Cystic Fibrosis Foundation to further support groundbreaking research and medical progress. Your gift is 100-percent tax deductible.
There are two ways to give. One, is to make a donation to the fundraising page of anyone on the Clayton's Army team roster. Or you can walk with us on May 20th for the approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising. Even if you do not wish to fundraise, the Great Strides walk is a fun, family-friendly event that raises awareness and support for people with CF and their families. We'd love to have you join us!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.