Hey everyone! Lego My Lungs is back again and we sincerely hope that you can come join us on walk day May 20th at Point State Park as we walk to support cystic fibrosis research. Please only join us in person if you are vaccinated. Otherwise, you can walk from anywhere with us virtually.
Our participation in Great Strides is a personal one - RJ is of course a CF patient.He's one of about 30,000 Americans that live with CF.It's important to note that 90% of every dollar raised goes to research - more than any other organization! And - it's working!On July 5, 2015,a combination drug therapy known as Orkambi was approved that directly treats RJ's mutation - Delta F508. RJ began taking Symdeko, another combination therapy, in later 2018 and noticed a lot of improvements. RJ has now been taking Trikafta, approved in 2019, for almost two years now and has drastically changed how his health is. His PFTs are off the charts and he has been taken off several other medications by his doctors.
We have many things to celebrate this year - RJ's 38th birthday, continued good health, RJ & Erin's tenth wedding anniversary, and Amelia's 8th birthday! When you walk with us and/or support us, you are giving RJ many more tomorrows and the hope for an even bigger, brighter future!
Last year we raised over $500 - can we do it again?
Lego My Lungs team is proudly sponsored by +Public, a benefit corporation in the State of Pennsylvania owned and operated by RJ Thompson and Kent Kerr
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.