Clayton Douglas Himmler was born on October 24th, 2017. A week after his birth, Jen and I were informed that he tested presumptive positive for Cystic Fibrosis. The next day, Clayton was taken to Children's Hospital to take a sweat test and it was confirmed that he has Cystic Fibrosis. Jen and I did not know how to respond, and we did not know what this was going to mean for us and especially Clayton.
Clayton is now three years old and loves to stay active. We believe his favorite activity is riding his blue bike. He looks like a natural on his balance bike going up and down the "brown hills"... this is what he calls the BMX track! He has learned that even if things don't go your way and you fall down, that all you have to do is to get back up and try again!
In order for Clayton to remain healthy for him to do the things he enjoys doing, his daily routine includes "must do's". In addition to his shaker vest done twice a day, he also takes Pulmozyme through his nebulizer once a day to help break up the DNA that causes the thick mucus buildup in his lungs. He spends at least 1 hour 15 minutes daily on these therapys, and can be longer if he has a cold or other illness.
Clayton's digestive system is also affected due to his CF. He must take Creon, a pancreatic enzyme, before eating any fats and/or proteins. He is currently taking at least 24 pills a day to assist with his meals. This also means he cannot snack whenever he wants to. If his snack has any fat or protein, then he must have extra enzymes.
We do not know what Clayton's future will look like, but we have hope. With your gift, you will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Or you can help me in reaching my fundraising goal by making a donation to my Great Strides fundraising page. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.