There are approximately 30,000 Americans living with cystic fibrosis.
Maevis is one of them. She was diagnosed at 6 days old with her infant bloodwork comig back with two genetic mutations of the most common and the most aggressive genetic mutations of the disease which is the, Double DeltaF508. She inherited one genetic mutation from both me and her father, which is the only way someone can have CF. Cystic fibrosis comes with hours of treatments a day, a personal team of doctors, many doctor appointments and regular testing, even more daily medications, and a whole lot of determination to fighting this disease and staying healthy.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!