Our grandchildren Bryce Porter Bungard was born April 8, 2019. Two years later, almost to the day, his baby sister Elsie Marloes was born on April 18, 2021. At two weeks old, they were both diagnosed with Cystic Fibrosis. In 2019, when Bryce was diagnosed the news came as quite a shock to his family, but they did what they do best-they rallied! They joined with the CF Foundation to help raise awareness and support the foundation’s mission to cure CF. In 3 short years, since joining forces with the foundation, Bryce & Elsie’s Buddies has raised almost $60,000! We couldn’t have done it without the help of our friends and family.
In October of 2019, the FDA approved a new triple combo called Trikafta, a new, highly effective CFTR modulator therapy that treats the underlying cause of CF. TRIKAFTA was approved for people 12 and older who have at least one F508del mutation, which Bryce and Elsie both have! In June of 2021, they approved Trikafta for 6-11 year olds. The approval of TRIKAFTA means that more than 90 percent of people with CF could eventually have a highly effective treatment for the underlying cause of their disease.
They are currently testing TRIKAFTA on children ages 2-6. This is such exciting news for the CF community!
Today Bryce is a thriving (almost) 3 year old who loves running around, playing with his big brother Rowan and talking up a storm. Elsie is a happy 11 month old who loves giggling at her brothers, crawling and eating new foods! Their diagnosis was life changing, but with the support of their family, it isn’t changing their life! They continue to amaze their doctors with their overall good health!
We are so thankful for everyone who continues to help raise funds and awareness so one day CF can stand for Cure Found! If you would like to donate to our team or walk in the event on May 14. 2022 PITTSBURGH GREAT STRIDES | Location: Point State Park please click on the link or you contact me personally. Thank you