Bryce Porter Bungard was born April 8, 2019. At two weeks old, he was diagnosed with Cystic Fibrosis. This news came as quite a shock to his family, but they did what they do best-they rallied! They created a team, Bryce’s Buddies, and joined with the CF Foundation to help raise awareness and support the foundation’s mission to cure CF. In less than two years, along with their friends and family, Bryce’s Buddies has raised $36,000!
The money they raised supports pharmaceutical trials and research, and real progress is being made! In October the FDA approved a new triple combo called Trikafta, a new, highly effective CFTR modulator therapy that treats the underlying cause of CF. TRIKAFTA was approved for people 12 and older who have at least one F508del mutation, which Bryce has! The approval of TRIKAFTA means that more than 90 percent of people with CF could eventually have a highly effective treatment for the underlying cause of their disease.
They are now testing TRIKAFTA on children ages 6-11. This is such exciting news for the CF community!
Today Bryce is thriving. He loves Buzz Lightyear, climbing, playing with his big brother Rowan, eating and running all over the place. His diagnosis was life changing, but with the support of his family, it isn’t changing his life! He continues to amaze his doctors with his growth and his overall good health.
2020 saw amazing progress in the treatment of CF, and there are such high hopes for what more can be done in the future.
We thank you for your donation and for supporting sweet Bryce and his CF journey.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.