My Great Strides Story
It has been 17 years since we first started fundraising for Drew’s Crew and Cystic Fibrosis Foundation. We have walked at four different locations, and even had a virtual walk or two. Each year brought different people, old friends, new friends, and far and near family. But one person has remained steadfast from the very beginning to our very last Great Strides event… my Mamaw! She started our team when I wasn’t even one year old, and she has worked hard to raise money each and every year! I am grateful to her for always supporting me in our fight for a cure for cystic fibrosis. She is my biggest cheerleader!
The past 3 1/2 years with my miracle drug, Trikafta have been life changing. I breathe better, I have more energy, and I am healthier than I have ever been. I still struggle with liver disease and digestive issues, but I am stable and living the full life of a teenager. I still believe that we will find a cure for CF in my lifetime!
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Thank you to my friends and family for all you have done and still do for me! I am grateful for all the amazing people in my life!