I'm RJ and I have cystic fibrosis. When I was diagnosed in 1985, my parents were told I wasn't expected to live very long - maybe past childhood into my teens. Every birthday was a celebration because no one knew when it would be my last. This year I'm celebrating 37 years of life - 37 years I wasn't supposed to reach. I celebrate this milestone with my daughter, Amelia - another milestone I wasn't supposed to reach. I guess you can say I'm not someone that always does what I'm "supposed" to - especially when it comes to my CF!
90% of money donated to the CFF goes directly towards research. No other charitable organizations can claim that. It works - there are countless drug therapies in the "pipeline" that aim to fix or correct the mutation at its core. A combination drug therapy, Trikafta, was approved this past year. This combination therapy works to "fix" my mutation, Delta F508, and I started taking it on my birthday, 2/10/20. This would not be possible without donations from people like you.
We'd love to see you walk with us this year, but if you can't make it, your support means the world to us. Remember - your donation is tax deductible! I can't wait to see how high I can soar if there is a cure!