Hello all! We are so happy to be continuing our support for Great Strides for the second year! Kane's diagnosis is such a lucky one but too many new parents out there had to face a message that we know how devastating it was to hear and we want to work so hard to find a cure! Drop the stigma off, "Oh no my child has CF." With a cure that goes away so help us towards that goal! Thank you all so much!
We have been so fortunate with this little boy of ours. At birth he was diagnosed with a mild form of CF which is called CRMS. 3 sweat tests later and he does not have to take any medicines daily and is just the happiest little man. Going through all of the testing was definitely a scary moment in our new parenting lives but Kane was a rock star as always, but we are so happy to be involved in this CF community and family to raise money to find the cure! Eliminate the stigma, stop the bomb dropping phone calls to parents about their newborns by having a cure that will save lives. We knew we did not want to shy away or be embarrassed by Kane's diagnosis and we just wanted to dive right in and be apart of such a great group of people. So please come join us and help raise money, just come hang out at our events, or come walk on May 18, 2024 down at the point and show your support!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.