Lucia & Palmer
I am the proud grandmother of Lucia and Palmer, 3 year old identical twin girls with one of the rarest forms of CF. Upon birth, they were life-flighted to Pittsburgh Children's Hospital, a two hour drive from home, where they spent their first 104 days in the NICU. They endured several surgeries and had a few close calls. The girls are currently doing well and thriving but their genetic mutation doesn't respond to the medications currently available. Lucia and Palmer are 2 of 12 Americans living with this rare variant. Money for research is needed for people with Cystic Fibrosis and desperately needed for the 7 percent of Americans with the rare variants of CF. Your donation is most appreciated.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.