Susan Albright

My Great Strides Story

Jake is our 11 year old son who loves basketball , baseball, drawing, hunting and anything with his friends! He is one of the happiest kids you could meet!! 

Jake has been fighting cystic fibrosis since birth and has always done everything with a smile !  We have been so fortunate for a new drug he started taking 8 years ago(Kalydeco), which has completely changed his life. We wouldn’t have been able to have any of this without the help from the CF Foundation and I know someday a cure will be found ! 

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.