Hello family and friends!
I hope that this finds you all well and looking forward to the arrival of spring! I am so excited to be planning for the 2023 Great Strides walk, a true celebration of the advances made in the Cystic Fibrosis world over the past year. We are walking in the Buffalo walk on Saturday, May 20th at 11:00am. We can’t wait to connect in-person with our local CF community and raise crucial dollars for the fight against Cystic Fibrosis. If you live in Buffalo, we’d love to have you join us that day!
My dear friend KC and her family are still navigating COVID times together in Cleveland. They have been very happy to be living together after stretches of difficult times apart pre-vaccines. KC completed her masters program at the University of Philadelphia in Applied Positive Psychology last spring and coached another successful high school lacrosse season. Almost simultaneously, KC took over as Chair of the National Cystic Fibrosis Foundation board, an incredible honor and huge responsibility. KC is only the 4th board chair in the foundation’s history and the first person living with CF to hold the position. What a milestone for the CFF and a sign of the promise of treatments and quality of life for those living with CF! KC has been traveling to a variety of locations in the US for CF events and meetings. She is so grateful for her current health which has enabled her to take on this role with the opportunities and challenges it brings.
The past several years of this pandemic forced many of us to pause, isolate, and come to understand a bit of what it’s like to live with cystic fibrosis, especially during winter months. Individuals with CF are well-versed in avoiding public places, isolating at home during flu season, taking their temperature and monitoring symptoms, washing hands religiously, and maintaining a 6 feet distance from other individuals with CF. As we have all returned to “normal” activities, individuals like KC have had to make daily decisions about the risks they choose to take, knowing that the consequences to their health from a Covid infection could be much more severe. KC is incredibly thankful for the powerful new CF drugs and excellent care she receives from her lung center which has given her confidence to face such uncertain times. When she tested positive for Covid last spring, her medical team spring into action, and she fought through her infection like the champ she is! These medical advancements are possible because of the dollars raised for the CF Foundation at events like Great Strides.
We are really looking forward to walking in Great Strides this spring. We have promised to walk each year to raise funds for drug development, research, and treatments for those living with CF. We can’t wait until the day when CF stands for Cure Found! We hope you will join us this year, whether walking with us on May 20th or donating to our Great Strides team. Your support and generosity means so much! Looking forward to seeing you all sometime soon.
With love and gratitude, Liza
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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