I hope that this finds you all well and looking forward to the arrival of spring after yet another long winter! I am so excited to be planning for the 2022 Great Strides walk, our first large in-person event for the WNY Cystic Fibrosis Foundation in over 2 years! We are walking in the Buffalo/Amherst walk on Sunday, May 22nd at 11:00am. We can’t wait to reconnect with the local CF community face to face and raise crucial dollars for the fight against Cystic Fibrosis. If you live in Buffalo, we’d love to have you join us that day!
My dear friend KC and her family are still navigating pandemic life together in Cleveland. KC spent a significant amount of time living separately from her husband Justin and her son Mac last year to reduce her COVID risk before vaccines were widely administered. In her determined way, she has slowly and safely returned to doing the things she loves like coaching high school lacrosse and working at the Cleveland Indians. She began a master’s program at the University of Pennsylvania in Applied Positive Psychology which she will complete this spring. Several weeks ago, it was announced that KC will be taking over as Chair of the National Cystic Fibrosis Board, an incredible honor and huge responsibility. KC will be only the 4th board chair in the Foundation’s history and the first person living with CF to hold the position. What a milestone for the foundation and a sign of the promise of treatments and quality of life for those living with CF!
This pandemic forced many of us to pause, isolate, and come to understand a bit of what it’s like to live with Cystic Fibrosis, especially during winter months. Individuals with CF are well versed in avoiding public places, isolating at home during flu season, taking their temperature and monitoring symptoms, washing hands religiously, and maintaining a 6 feet distance from other individuals with CF. As we have all slowly returned to “normal” activities this past year, individuals like KC have had to make daily decisions about the risks they choose to take, knowing that the consequences to their health from a COVID infections could be much more severe. KC is incredibly thankful for the powerful new CF drugs and excellent care she receives from her lung center which has given her confidence to face such uncertain times. These medical advancements come from the dollars raised for the CF Foundation at events like Great Strides.
We are really looking forward to walking in Great Strides this spring. We have promised to walk each year to raise funds for drug development, research and treatments for those living with CF. We can’t wait until the day when CF stands for Cure Found! We hope you will join us this year, whether walking with us on May 22nd or donating to our Great Strides team. Your support and generosity means so much! Looking forward to seeing you all sometime soon.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.