Oliver was diagnosed with cystic fibrosis with pancreatic insufficiency at two weeks old. I was so shocked to hear these words, I thought someone must have made a mistake by telling me this. Especially after being diagnosed with a few unrelated neurological birth defects prenatally. He has had some setbacks, but overall has been doing very well! Oliver has 2 rare mutations, only a few other people ever recorded in history have had the same gene defects as him. Luckily, the new research, therapies, and modulators have helped him so much already, even with being a kid with 2 rare mutations. Donations to the CFF continue to help Ollie defy the odds!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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