Our lives were changed forever in 2020 when our daughter Louisa was diagnosed with cystic fibrosis - a progressive, genetic disease that affects the lungs, pancreas and other organs.
Her diagnosis was shocking and devastating, but proper medical care has transformed her life into the healthy 4 year old she is now. She’s feisty and opinionated, our little miss independent. She rarely bats an eye at the hours of weekly treatments she endures and can tell you the names of all her medications.
While the medical advancements in the CF community are happening quickly and are extremely promising, we still do not have a cure. Every dollar makes a difference in helping kids and adults with CF live longer, healthier more normal lives.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal. No donation is too small to get us one step closer to a cure!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.