The reason we walk...
As many of you know, Cystic Fibrosis has been on our minds since 1991. When our daughter was born in December of that year, the outlook was bleak. As a family we chose to take a one day at a time approach to fight this disease. We put our efforts into prayer, research, our doctors, and a daily regimen for our daughter that consumed every facet of our lives.
There is currently no cure for cystic fibrosis.
For those of you who don't know, cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person.
Through the efforts of the Cystic Fibrosis Foundation and many dedicated scientists, some fantastic medications were developed. The first life changing drug was approved in 2015; our daughter was 23 years old at the time. It changed her life. She was able to live!
Although people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
There are also 10% of CF patients who do not benefit AT ALL from the current medications. They spend each day struggling to breathe and perform the most basic of tasks.
By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.