Hello family and friends,
I hope that this finds you all well and looking forward to the arrival of spring after yet another long winter! I am so excited to be planning for the 2022 Great Strides walk, our first large in-person event for the WNY Cystic Fibrosis Foundation in over 2 years! We are walking in the Buffalo/Amherst walk on Sunday, May 22nd at 11:00am. We can’t wait to reconnect with the local CF community face to face and raise crucial dollars for the fight against Cystic Fibrosis. If you live in Buffalo, we’d love to have you join us that day!
My dear friend KC and her family are still navigating pandemic life together in Cleveland. KC spent a significant amount of time living separately from her husband Justin and her son Mac last year to reduce her COVID risk before vaccines were widely administered. In her determined way, she has slowly and safely returned to doing the things she loves like coaching high school lacrosse and working at the Cleveland Indians. She began a master’s program at the University of Pennsylvania in Applied Positive Psychology which she will complete this spring. Several weeks ago, it was announced that KC will be taking over as Chair of the National Cystic Fibrosis Board, an incredible honor and huge responsibility. KC will be only the 4th board chair in the Foundation’s history and the first person living with CF to hold the position. What a milestone for the foundation and a sign of the promise of treatments and quality of life for those living with CF!
This pandemic forced many of us to pause, isolate, and come to understand a bit of what it’s like to live with Cystic Fibrosis, especially during winter months. Individuals with CF are well versed in avoiding public places, isolating at home during flu season, taking their temperature and monitoring symptoms, washing hands religiously, and maintaining a 6 feet distance from other individuals with CF. As we have all slowly returned to “normal” activities this past year, individuals like KC have had to make daily decisions about the risks they choose to take, knowing that the consequences to their health from a COVID infections could be much more severe. KC is incredibly thankful for the powerful new CF drugs and excellent care she receives from her lung center which has given her confidence to face such uncertain times. These medical advancements come from the dollars raised for the CF Foundation at events like Great Strides.
We are really looking forward to walking in Great Strides this spring. We have promised to walk each year to raise funds for drug development, research and treatments for those living with CF. We can’t wait until the day when CF stands for Cure Found! We hope you will join us this year, whether walking with us on May 22nd or donating to our Great Strides team. Your support and generosity means so much! Looking forward to seeing you all sometime soon.
With love and gratitude, Liza