“We are TEAM LOUISA, Denise and I started in 2020 when our granddaughter Louisa was diagnosed with CF after more than a year of inconclusive testing; at the time of diagnosis, she was 18 months old.
Her diagnosis was shocking and devastating, but proper medical care has transformed her life into the healthy 5-year-old she is now. Louisa is funny, sensitive, somewhat sassy and quite energetic--all due to the faithful daily medical protocol her family follows with her. She rarely bats an eye at the hours of weekly treatments she endures and can tell you the names of all her medications.
Her life saving medical protocol is possible only through decades of scientific research and millions of funds raised to support the research efforts.
Her life saving medical protocol is possible only through decades of scientific research and millions of funds raised to support the research efforts.
While the medical advancements in the CF community are happening quickly and Louisa has been lucky enough to benefit from them, we still do not have a drug that works for all of those with CF or a cure.
Every dollar makes a difference in helping kids and adults with CF live longer, healthier more normal lives.
We'll continue to fundraise until we can make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.