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Our lives were changed forever in 2020 when our daughter Louisa was diagnosed with cystic fibrosis - a progressive, genetic disease that affects the lungs, pancreas and other organs.
Her diagnosis was shocking and devastating, but proper medical care has transformed her life into the healthy 5 year old she is now. She’s feisty and opinionated, our little miss independent. She rarely bats an eye at the hours of weekly treatments she endures and can tell you the names of all her medications.
While the medical advancements in the CF community are happening quickly and Louisa has been lucky enough to benefit from them we still do not have a drug that works for all of those with CF or a cure.
Every dollar makes a difference in helping kids and adults with CF live longer, healthier more normal lives.
We'll continue to fundraise until we can make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.