In 2010 our little man was born and all was well as we welcomed our first child into this world. We had gone through all of the tests both pre and post birth - PKU which were testing positive fro Cystic Fibrosis. We were called in for an additional (3rd) testing and the results showed negative for Cystic Fibrosis.
The next few years go by and though Duane had several colds and coughs we thought this was normal as we had him in a couple of different child care centers. In learning about other parents' experiences, it sounded like kids were always sick and with day care facilities it 'comes with the territory'.
Mom had a history of CF in her family but dad had no known relatives with the condition so we didn't have Dad tested for the gene. One Thursday night we were battling another pro-longed illness and pulled up the symptom checker on WebMD to see what we could find out. As we started checking things off, it became all too apparent that Duane may have Cystic Fibrosis. One of the last symptoms to check was to taste his skin and see if it was overwhelmingly salty, which it was. Our hearts sank and we cried all night trying to come to terms with how our future would change.
Fortunately our little guy has a mild case of Cystic Fibrosis however it is still a daily challenge for the whole family. There are so many more people with much more challenging situations regarding CF and we hope that someday there will be a cure. The medications are quite expensive and the Cystic Fibrosis Foundation is relentlessly working to increase awareness, create positive outcomes, and assist in the well being of the CF community.
If you can help Duane and all of our CF community by walking with us in the Great Strides Seattle event or by donating resources to the foundation, we can move one step closer to finding a cure.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.