There has been many holidays spent in the hospital, many traditions missed, a lot of family time split up, many missed parties and fun but this year has been different. In April she started dupixent to control her allergies and trikafta to better manage cystic fibrosis.
This year has been KK's healthiest, strongest, most exciting year so far! She made it through new sports without having to take a break due to illness, got to enjoy trick or treating with friends, excelling in school and enjoying being a "normal" kid. So proud of this litte woman and all the obstacles she has gotten through!
Cystic Fibrosis is the number one genetic, fatal disease that affects children in the US, yet CF receives ZERO financial support from the government!
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.