Duane’s story,
In 2010 our little man was born and all was well as we welcomed our first child into this world. We had gone through all of the tests both pre and post birth - PKU which were testing positive fro Cystic Fibrosis. We were called in for an additional (3rd) testing and the results showed negative for Cystic Fibrosis.
The next few years go by and though Duane had several colds and coughs we thought this was normal as we had him in a couple of different child care centers. In learning about other parents' experiences, it sounded like kids were always sick and with day care facilities it 'comes with the territory'.
Mom had a history of CF in her family but dad had no known relatives with the condition so we didn't have Dad tested for the gene. One Thursday night we were battling another pro-longed illness and pulled up the symptom checker on WebMD to see what we could find out. As we started checking things off, it became all too apparent that Duane may have Cystic Fibrosis. One of the last symptoms to check was to taste his skin and see if it was overwhelmingly salty, which it was. Our hearts sank and we cried all night trying to come to terms with how our future would change.
Fortunately our little guy has a mild case of Cystic Fibrosis however it is still a daily challenge for the whole family. There are so many more people with much more challenging situations regarding CF and we hope that someday there will be a cure. The medications are quite expensive and the Cystic Fibrosis Foundation is relentlessly working to increase awareness, create positive outcomes, and assist in the well being of the CF community.
If you can help Duane and all of our CF community by walking with us in the Great Strides Seattle event or by donating resources to the foundation, we can move one step closer to finding a cure.
Thank you for considering!
Duane's Warriors
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