My Great Strides Story
This month, I celebrated my 4th anniversary of working with the Cystic Fibrosis Foundation... time flies! I didn't know anything about CF when I first joined and now I have the privilege to say that I have many friends in the community who are living with CF or have children/grandchildren with CF.
The Cystic Fibrosis Foundation works to improve and lengthen the lives of those with CF, despite the fast that there is still no cure. In the last decade there has been the approval of several life-changing drugs known as modulators. These drugs work for about 90% of the CF population and significantly improve lung function. The current life expectancy for people with CF is 56 years old, a substantial jump from a decade ago, when the life expectancy was 38.
However, this is not enough. The modulators are not a cure and they do not work for ALL people with CF. 56 years is not long enough. We will continue to fight until there is a cure for all people with CF.
Here's more information about CF and the CF Foundation:
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis a life free from the burden of this disease and we will not leave anyone behind.
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
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