Our Great Strides Story
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face an uncertain future and the prospect of a shortened lifespan.
The CF Foundation, in partnership with both the pharmaceutical industry and the CF clinical community, has fostered the development of groundbreaking research which has resulted in more than a dozen life altering CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
Lisa and Tanner Read were married in Sedona last October 2022. Lisa continues to lead a healthy and active lifestyle, in large part due to the life changing benefits of the latest CF protein-modulator drug, Trikafta. However, not all patients with CF will benefit from Trikafta; and it is these ~10% of CF patients that will require an alternative genetic-based therapy. We will continue to be committed to fundraising until a cure is found for all those living with CF.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.