Our Great Strides Story
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face an uncertain future and the prospect of a shortened lifespan.
The CF Foundation, in partnership with both the pharmaceutical industry and the CF clinical community, has fostered the development of groundbreaking research which has resulted in more than a dozen life altering CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
Lisa and Tanner Read were married in Sedona last October 2022. Lisa continues to lead a healthy and active lifestyle, in large part due to the life changing benefits of the latest CF protein-modulator drug, Trikafta. However, not all patients with CF will benefit from Trikafta; and it is these ~10% of CF patients that will require an alternative genetic-based therapy. We will continue to be committed to fundraising until a cure is found for all those living with CF.