There has been many holidays spent in the hospital, many traditions missed, a lot of family time split up, many missed parties and fun. In April 2021, she started dupixent to control her allergies (ABPA) and trikafta to better manage cystic fibrosis.
KK is the healthiest she has ever been! She has maintained lung function, able to fight off colds without admittances, and enjoying being a "normal" kid. So proud of this litte woman and all the obstacles she has gotten through! Next year she will be entering high school and I'm so excited for her to be able to ENJOY normal activities.
Cystic Fibrosis is the number one genetic, fatal disease that affects children in the US, yet CF receives ZERO financial support from the government!
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease.
Please support me in my fundraising efforts.