There has been many holidays spent in the hospital, many traditions missed, a lot of family time split up, many missed parties and fun but we this year has been different. In April she started dupixent to control her allergies and trikafta to better manage cystic fibrosis.
This year has been KK's healthiest, strongest, most exciting year so far! She made it through new sports without having to take a break due to illness, got to enjoy trick or treating with friends, excelling in school and enjoying being a "normal" kid. So proud of this litte woman and all the obstacles she has gotten through!
Cystic Fibrosis is the number one genetic, fatal disease that affects children in the US, yet CF receives ZERO financial support from the government!
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease.
Please support me in my fundraising efforts.