Simeon's Superfans

Our Great Strides Story

Simeon’s cystic fibrosis diagnosis was the first time we had ever heard of the disease, and it put us on quite the unpleasant road of discovery. He had major bowel issues right off the bat, for which he has been taking pancreatic enzymes since he first started eating. We also do daily airway treatments for his lung health, and closely monitor anything that might be amiss in regards to his guts and lungs. 

Thanks the really great work of the Cystic Fibrosis Foundation, doctors and researchers have discovered so much about treatments and medications that help CFers live longer and enjoy a higher quality of life. In the 1950’s, the life expectancy was about 6 years, and today, it’s up in the 50’s! We do not take this for granted, and the work is not finished. There are still mutations of the disease that aren’t treatable, and there is no cure for any mutation. 

We walk for Simeon and all of the CFers out there to have the opportunity for a full healthy life without the limitations of cystic fibrosis. You can join us by walking, donating, or learning more about the disease (the book, Breath from Salt, has been extremely informative to me!)! Help us make CF stand for Cure Found!