Hansine Holm

My Great Strides Story

When Simeon was born, and we first started learning about cystic fibrosis, we were completely overwhelmed. So much information, so many scary statistics, all of the what-ifs that we were left to wonder about. As he’s grown and we have learned more about CF and all of the developments with treatments, we are way less scared of his reality! With the work of the CF Foundation and all of the members of his care team, his future is brighter than ever! This is not the case for all CFers, both because of availability of treatments, and because of genetic mutations of the disease that aren’t as treatable (yet!). Working towards a cure is something I believe in because it’s personal, and all CFers deserve a higher quality of life!

Cystic fibrosis affects the lungs, pancreas, and other organs. For Simeon, digestion and food absorption has always been a big focal point. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.