2024 is our twenty second year of Great Strides. We are so excited that Benjamin & the Laniacs gets to join in at the Spokane Great Strides walk in person again on Saturday, June 1, 2024.
Elaina was diagnosed with Cystic Fibrosis at 5 months of age and has been hospitalized numerous times to battle her lung infections and digestive problems, in addition to now dealing with CF related diabetes requiring an insulin pump. We received results of the genetic testing indicating that Benjamin also has cystic fibrosis when he was 8 days old. We do our best to keep the kids relatively healthy with their daily regimen of treatments and medications, but really hope the day will come soon when CF stands for Cure Found!
CF is a devastating, life shortening genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. To learn more about CF and the CF Foundation, visit www.cff.org.
The CF Foundation continues to be ranked the number one health research organization as nearly 90 cents of every dollar raised goes directly to research and care programs to benefit people with Cystic Fibrosis.
Together, we can make a difference and ensure a happy and healthy life for Lanie, Benjamin and all others with CF! Thank you for supporting the mission of the CF Foundation and Great Strides!
Sincerely, Bob, Sam, Elaina, and Ben Nixon "Benjamin & The Laniacs"
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.