My Great Strides Story
This year, I celebrated my 10 YEAR work anniversary with the Cystic Fibrosis Foundation, and I couldn't believe in the work we are doing more. The progress in just the past 10 years has been incredible, and it feels like we are so close to the finish line, but we aren't there yet!
There are still far too many people losing their battle to CF, and we will not stop until there is a cure for ALL people living with cystic fibrosis. This year, I listened to a father talk about losing his daughter to CF during the volunteer leadership conference. He asked everyone who has lost someone to CF to stand up and say the name of their loved one out loud. He said, "I learned the importance of speaking someone's name who passed away...what a meaningful way to honor someone's life and demonstrate remembering and caring."
While I watched the speech virtually from my computer at home, I spoke 3 names out loud: Alyssa, Nikki and Noah, and as tears ran down my cheeks, I knew we had to do more in their honor and in honor of all those who have lost their battle too soon.
If you are interested, you can watch the speech here: https://www.youtube.com/watch?v=r_JGU_lU3pc
So this year, I am choosing to walk in memory of Alyssa, Nikki and Noah. I hope you will join me in supporting the Cystic Fibrosis Foundation and be a part of the cure.
Thank you for generously supporting my team in the past and continuing to help me reach my goals. In 2023, we broke the $2,000 mark, and I'm hoping we can go above and beyond this, and break the $3,000 mark.
Here's more information about CF and the CF Foundation:
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.