I'm doing this for Connor. And for all the people with cystic fibrosis and their families. But mostly for Connor
Learning when he was a newborn that my grandson has cystic fibrosis was devastating and overwhelming. When he was first diagnosed, there were no disease modifyfying drugs available. Since then, thanks to research funded by CFF, he has been taking modulating drugs. Since starting Trikafta in 2021, his health has improved dramatically. This knowledge helps offset the worry about his disease to know about tangible progress in research for drugs that will make a huge difference in the lives of people with cystic fibrosis. This research would not happen without financial support from the Cystic Fibrosis Foundation, which is funded by donations from people like you. This fundraising effort will directly benefit the lives of people living with cystic fibrosis, including Connor.
PLEASE HELP FIND A CURE FOR CONNOR
You can help by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. I am so grateful from the overwhelming support we have seen in the past year from family, friends and community. Your donation is 100-percent tax deductible.
Our team is called Connor's Cure Finders, because that IS our goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.