Virginia Beach 2020 Great Strides and 5K Run for the Roses
Thank you for visiting Evelyn's Entourage donation page! Evelyn is a sassy 6 year old Cystic Fibrosis superhero living in Virginia Beach.
Evelyn LOVES a good story, and her story is a good one. A week before her due date she made a surprise entrance into this world in the front seat of a Mazda in the hospital parking lot. With all the confusion of her vehicular birth the results of her infant screenings were overlooked and she was not diagnosed with CF until her 4 month check up. At that point she had failed to gain weight for 4 weeks and was categorized a failure to thrive baby.
Thus began the CF journey of medications, hospital stays, a nasal feeding tube, a gastric feeding tube placement surgery, and the introduction of multiple treatments and therapies. Evelyn is currently on 10 different medications and does 2-4 airway treatments a day. Still, her case is deemed mild compared to other kids with CF her age.
No matter what we throw at her, Evelyn remains a bright light of joy in a sea of challenges. She loves to color, dance, write/preform songs, ride bikes, and makes friends where ever she goes.
When she grows up she wants to be an architect princess rock star. With your help and support there is no doubt she can do it all. Thank you for adding tomorrows, her epic story is just beginning.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.