Just like most cystic fibrosis stories.. Patton was diagnosed after a failed newborn screen. To say the least, the diagnosis took us very much by surpise. We had maybe 2 minutes to process the diagnosis before we had to learn how to keep him as healthy as possible. We immediately launched in to learning how to adminster medications, do chest physiotherapy and every thing that he would need to get a good start. The first year was unbelieveably hard. He spent most of the sick season with RSV and the flu. He never went out in public but illness still found him. We spent the summer months trying to come into our "new normal". After Patton's first birthday we recognised that he was having some feeding difficulites which has led to weekly feeding therapy vistits and a tongue tie revision. Since he was already going under anestheshia, we opted to go ahead and do a bronchscopy that way our Care Team could take a good hardy look at the lungs. As we knew from xrays earlier in the year, Patton has lung damage even at 12 months of age. During the bronchoscopy we have discovered that Patton now has staph growing in his lungs. We do everything we should be doing. But still our baby had turned a new leaf in the cystic fibrosis chapter.
Patton is a fighter. He has completed over 800 hours in a year doing his Vest treatments or chest physiotherapy. Taken thousands of pancreatic enzymes and other medication. But he is so happy and full of life.
We would love if you would join our family and friends as we walk to cure CF.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.