Just like most cystic fibrosis stories.. Patton was diagnosed after a failed newborn screen. To say the least, the diagnosis took us very much by surpise. We had maybe 2 minutes to process the diagnosis before we had to learn how to keep him as healthy as possible. We immediately launched in to learning how to adminster medications, do chest physiotherapy and every thing that he would need to get a good start. The first year was unbelieveably hard. He spent most of the sick season with RSV and the flu. He never went out in public but illness still found him. We spent the summer months trying to come into our "new normal". After Patton's first birthday we recognised that he was having some feeding difficulites which has led to weekly feeding therapy vistits and a tongue tie revision. Since he was already going under anestheshia, we opted to go ahead and do a bronchscopy that way our Care Team could take a good hardy look at the lungs. As we knew from xrays earlier in the year, Patton has lung damage even at 12 months of age. During the bronchoscopy we have discovered that Patton now has staph growing in his lungs. We do everything we should be doing. But still our baby had turned a new leaf in the cystic fibrosis chapter.
Patton is a fighter. He has completed over 800 hours in a year doing his Vest treatments or chest physiotherapy. Taken thousands of pancreatic enzymes and other medication. But he is so happy and full of life.
We would love if you would join our family and friends as we walk to cure CF.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.