Owen will Overcome!

Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal! 

Our Great Strides Story

Join our team to help make a difference in the lives of all people living with CF. To become a member, click the "Join this  team" button. From there, you can donate and start fundraising.  

As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.

Owen's Story

On Wednesday January 4th, Owen tested positive for Cystic Fibrosis after completing a sweat test earlier in the day. Zach and I found out while I was pregnant that we were both carriers for CF, but we, like many parents thought, "there's no way it will happen to us". 

We had an appointment at the CF clinic through CHKD in Norfolk on Friday the 6th from 8am-12pm. We met with a Pulmonologist, Social Worker/Mental Health Coordinator, Dietitian, along with other doctors and nurses who will be a part of our care team. We were given an incredible amount of information, but the ultimate takeaway was that while this disease was once considered terminal, but so many advancements have been made and now people with this diagnosis are now able to live full lives. He will have to undergo many treatments to manage his health every day, but this condition will not impact his quality of life. 

This kid has been through so much already (a ventricular septal defect, torticollis, a dysplastic kidney, and a clubbed foot that he recently underwent surgery to correct), but he is stronger than we could have anticipated. We will do anything and everything in our power for our lil camper. We ask that anyone interested in seeking more information refer to the Cystic Fibrosis Foundation website (www.cff.org) for the most accurate data.